A big thanks to Denise Clark and her son Andrew who came to Kay Germaine and St. Helene. They performed eye examinations and provided glasses to children and staff in the schools.
As a girl growing up in Mayo, Ireland, Gena Heraty beseeched God to show her where and how she was needed in the world, says Sarah Caden, and, ultimately, he sent her to Haiti. There, she found her calling among children with disabilities, shunned, discarded and neglected by their families and society. Gena has spent decades bringing love and first-world treatments to ‘her’ kids, but her huge heart always hopes for more. Here, she opens up her personal photo album to LIFE – Sunday Independent June 14th 2015.
In the normal course of events, as the mother of a child with a disability, if you said “handicapped” to me, it would be a deal-breaker, a relationship terminator. However, when Mayo woman Gena Heraty uses that word to describe some of the children she cares for in Haiti, it’s OK.
Gena gets a special dispensation, because what Gena is doing for the children with disabilities that she cares for is incredibly special. In Haiti, where people with intellectual and physical disabilities are routinely neglected and regularly shunned, Gena is a shining light. And Gena uses the word “handicapped” knowing that here in Ireland, the language of disability has moved on from such terms, but the language is not what matters in Haiti.
Over there, she’s too busy trying to keep a roof over the heads of ‘her’ Haitian children and adults with special needs to pause and absorb the semantics. And what anyone associated with disability will tell you is that while language matters, actions matter even more, and Gena is a woman of action.
Gena meets me in a Dublin city cafe en route from Mayo back to Haiti, where she has been for 22 years. She’s had a lovely time with her family, making scones with her mother despite her recent diagnosis as coeliac, catching up with her siblings and nieces and nephews and forcing herself to do some media spots to rustle up some much-needed funds for her work.
“For the first few years when I was in Haiti,” she says, “I felt like an alien when I came back home to Ireland. I didn’t feel like anyone here could understand what I was doing there and I couldn’t talk about it. But, over the years, I’ve learned the value of two wonderful families, in Haiti and in Ireland, and I’ve learned to live in the present. When I’m in Ireland, I’m with the people in Ireland. And then, when I’m in Haiti, I speak to Ireland on the phone, but the second I put the phone down, I forget and I’m fully in Haiti.”
So, when we meet, as she travels back to Haiti, Gena’s head is already there. Her mind is on one of her children who is very sick, about whom doctors have said there is no hope “a million times”, but who keeps fighting. The worst thing, Gena says, is if one of the Haitian children dies when she’s in Ireland.
“This job and my whole life,” she explains, “is about loving and losing. It’s about opening your heart and putting yourself into these children and losing them and then loving again. It’s about transforming pain into something beautiful; that’s what we do.”
Gena has been in Haiti since the early 1990’s. She went there after spending some time working for the Simon Community in Dublin, having always felt drawn to doing something meaningful in the world. An acquaintance in Simon told her about the Nos Petits Freres et Soeurs program in Haiti, a country she couldn’t even have found on the map at the time. But something about it chimed with her and she made contact and she went. She found a country that didn’t know what to do with children with disabilities, and she found an organisation, a community, where she instantly felt she could help. And she did, and she does.
When Gena went to Haiti, the programs ambition was to build a home for children with special needs who had been abandoned. Now, with Gena as director, the program runs four facilities that give levels of care and therapy that would be the envy of many services in the developed world. They work to keep kids with disabilities with their families, in a country where, she explains, they are routinely abandoned and “humiliated” as useless and disposable. It’s hard work, but it’s harder work changing the culture of contempt in Haiti and near impossible work to raise the money to keep their services alive.
“The problem is both to do with culture and poverty,” Gena explains. “But the main thing is poverty; because no mother would ever want to abandon her child. But if you picture a disabled child in Haiti, typically the mother will have five or six other kids. And as soon as it becomes obvious that this child has special needs, eight times out of 10, the father will say he wants nothing to do with it, and he’ll do a runner. Often the father will have children with several women, so it’s not your typical family structure, and the mother is then left to mind all these kids. But even if that wasn’t the case, culturally,” Gena continues, “even if it was a typical family, there is 80 percent unemployment in Haiti and the parents and children could be out on the street selling rags or soap just to keep the family alive. If that family has a kid with special needs, someone has to stay in and mind that child. And then there’s no money for food. And most people are only eating one meal a day anyway, if they’re lucky. So then this child becomes a burden. So nine times out of 10, if they’re not abandoned and if there’s not someone to mind them, they’re left in the house, door closed, and they’re there all day until the mother comes back.”
While Gena talks with compassion and sympathy about families, and specifically mothers, who want to do their best but just can’t, she goes hard on a Haitian society that dismisses out of hand their children with disabilities. She talks about how there are grants for people made disabled by the earthquake in 2010, but none for her children and adults. She talks about no availability of wheelchairs and no proper foot paths to wheel them on, anyway. She talks about a society that chooses to ignore that disability even occurs.
“These people are utterly humiliated by society,” Gena says. “The tap-tap, the local transport that’s basically pick-up trucks with a little roof converted into a bus, they won’t even stop for them. People on the tap-tap would say, ‘Where are you going with that thing? You should dump that thing. That thing’s no good!”
Initially, in Haiti, Gena’s work was out in the country, up in the mountains. They had nine kids, who had been abandoned, who were being sent to Mexico, to a sister program for therapies and treatments. Gradually, they informally trained themselves up – with the help of visiting volunteer therapists – to help the children themselves and, slowly, the program developed.
In 2004, around the time that Gena became director of the program, they began branching out to involve mothers and keep the children in their families. Nos Petits Freres et Soeurs offers education, therapy, support, and, increasingly, children stay with their mothers.
“In those years, we created a very good program,” she says, “and I always thought it could be replicated. People were always ringing me up about children in need and children who had been abandoned, but we didn’t have space for them. So I decided that what we really had to do was solve the problem of abandonment. My dream is that every child and family in Haiti with special needs will have services and won’t be abandoned and shunned and rejected,” Gena says.
Growing up near Westport, Co Mayo, Gena always believed that there was a mission for her, somewhere out there. “For as far back as I can remember,” she says, “I was interested in the developing world. In our church at home, we’d have people coming home from the missions and they’d come in to the school, and I remember thinking, ‘I could do that’. But they were always nuns, I was very aware of that. And I didn’t want to be a nun. It was in my head that I wanted to do this without having a title, but I was aware that it seemed you had to be someone a nurse, a doctor, a nun. I just wanted to be an ordinary person doing this work. It was also in my head that if there was a God in this, he must have a job for me,” Gena continues. “Because if God made me, then he or she should find something for me. So my prayer all through secondary school was for God to find me a job. And at the end of secondary school, still no sign of a job. I remember being out shaking the hay saying, ‘Come on now, God, I need some direction.”
With no sign of direction in sight, Gena followed her sister to the University of Limerick, where she got a degree in business studies. By the end of the course, she was despairing of what to do next, when she heard about a place in Dublin running courses preparing people for voluntary placements in the Third World. Gena approached the organisation and they advised her to undertake some voluntary work in Ireland first, and that led her to the Simon Community. During her time there, Gena met a fellow volunteer who had been in Haiti, where he had been working with abandoned children with severe disabilities, for whom they were trying to build a home. He asked Gena if she’d come and help.
“I said, ‘Yes, but I have no qualifications. I’ve no experience with handicapped kids,”‘ she explains. “He said, ‘If you are able to work in Simon, you are able to work there’:’ And so, off Gena went to Haiti. All she knew about the country was Papa Doc and the ‘awful heat’: When Gena arrived in Haiti, she was brought to this tiny house in the mountains where the abandoned children with disabilities were housed. There were only three children there when she arrived, as the others were in Mexico for treatments. The fellow volunteers showed her where they slept on mattresses on the floor beside the children and explained that the little house had once been a stable. “It all seemed so bleak,” Gena recalls.
One month later, the six other children returned to Haiti. “We went to pick them up at the airport,” Gena says, “and they all had these really thick prism glasses on. They looked so weird, like aliens, and I thought, ‘Oh my God: I knew nothing about this, nothing about autism, or cerebral palsy or anything. Simon had been rough and ready, but nothing like this. I thought, ‘OK, this could be interesting.”‘ On the transport back to the mountains, a little girl called Eliane sat on Gena’s knee. Gena made it her mission to make Eliane laugh, and she did, and, later, one of the women told Gena that she’d never seen the little girl engage with anyone before. That connection with Eliane, who had hydrocephalus and had numerous operations and was very sick, became the turning point in Gena’s life.
“She had to go back to Mexico and I was picked to go to with her,” Gena recalls. “You have to picture it: she was very severe and very sick and I had no experience. It was just me and her and I had no Spanish to speak to the people treating her. Every day, I thought she was going to die on me. I was petrified. It was very stressful, but from that moment, when it was me and that child, and me doing my best to keep her well and alive, that was so bonding. And I thought, ‘For as long as she’s alive, I’m never going to abandon her.’ It was sealed for me. This was my spot in the world.” Eliane died in 1997. “That was the first disaster for me;’ Gena says, “when she died.”
“You’re winging it at the start,” she continues, “but you can be amazed what you find in yourself in these situations. When Eliane died, I thought that no matter what else happens to me in life, nothing can be worse than this. Because I couldn’t imagine anything worse than the suffering with her and the loss of her. It’s one thing when you suffer yourself, but when a kid suffers and dies, you die twice over.”
Children whom Gena and her team have loved and laboured for have died since and it has been hard every time. Even in the time between meeting Gena and writing this piece, she mails me about the loss of one of the young adults in their care. Also, as Gena admits, you can’t help but have pets, and she picks out a pair of twins that they cared for, both of whom had cerebral palsy.
“This mother had three kids already,” Gena explains.” And then these two, with severe cerebral palsy. And we said, ‘No, we don’t take kids who have parents, so she went and came back a few months later and said, ‘I don’t want to abandon my children. I need to find them somewhere that I can visit them, but they are cared for,’ so we took them.
“Karvens and Cleevens,” says Gena, recalling the twins. “They were so severe. Karvens was my little prince. I love them all, but some touch you in particular. He died after two years, but Cleevens is still alive, and that family comes every month, for the last 14 years, to visit. Cleevens went to his sister’s wedding. He’s still very much part of the family.”
These are the triumphs in Gena’s Haiti, triumphs that might seem small somewhere else, but which are big there. She talks about the school they run for children with disabilities giving them an education they would never get otherwise. She explains how she and her staff have no formal qualifications as therapists and teachers, but they have learned from professional volunteers who have visited. It’s a can-do attitude, instead of an attitude that could see them waiting forever for funding for staff with the degrees and the formal training.
Her ambition, Gena says, is to create a situation where adults with disability could find a purpose and an occupation in Haitian society. Tiny, tiny steps is what it’s about, but she’s hopeful, and she is a person who can put a positive spin and find the hope in just about anything.
For example, the 2013 attempted robbery at her accommodation in Port au-Prince, during which she was attacked with a hammer and a security man, Major, was killed. Ask Gena about this and she focuses attention on Major’s dedication and the fact that two of the young adults in her care rushed to her defense.
“That attack only confirmed that I was in the right place,” Gena says. “Imagine being somewhere where you’re about to be killed and two kids with disabilities come to your rescue. And one of them got a whack for her efforts.”
Even then, Gena felt no diminishing of her sense of mission and no despair that she was fighting a losing battle in Haiti. She sees small ripples of change as a result of their efforts, she says, though it’s near impossible to get any financial support in Haiti. “My mission is to give a first-world service in a third-world country,” she says. But, for that, Gena needs support from the first world.
“And that’s hard. I won’t tell lies, so we don’t get any of the grants for the people who were made disabled as a result of the earthquake. And when you ask for money anywhere, there are checks and balances to be taken into account and we don’t tick the boxes. They want to know about sustainability, but there is none in Haiti. They ask about our income, but we have no income.”
“I get annoyed, you know? When I look at how it’s all grown, from a little house in the middle of nowhere to this facility, with hydrotherapy and classrooms and everything, I’m so amazed. But it’s all about money; that’s the pain in the neck.” She hates doing publicity, hates going on the radio or appearing in the press, but it’s necessary.
“Denis O’Brien is a huge help,” Gena says. “He’s been fantastic. There was a young fella shot in front of our gate a while back, paralysed from the waist down, and I wrote an email about it and within a day, Denis O’Brien got back to me and asked was there anything he could do, and he paid off some of his bills in the hospital. And he’s creating employment in a country where there is none, and they’ve built 150 schools. Good schools with computer labs; I’ve been to them. People give off about him, but if only there were more people like him.
“But, really, we get by on small donations,” she adds. “One million people giving a euro each is €1m.” She explains that they have no speech therapists at the moment, that they have let go three special needs assistants in the last year and scaled back various operations.
They need to raise $500,000 (€460,000 ) in the next year to get things back to a level that Gena would be satisfied with, and that’s not even starting into working on building a vocational educational facility for young adults.
“I never accept that there is no hope,” says Gena. “When we were going to expand out into a rehab facility, I didn’t know the first thing about rehab and had never been in one. But that didn’t stop me. I emailed every care provider I knew, and asked them what should be in a rehab facility. My attitude in life is that if I was in that position, what would I want? Not what’s good enough for someone in Haiti, what’s good enough for anyone in that position? You have to aim for the top. No matter where you are.”
Never, ever has Gena wished that she was somewhere else other than where she is in Haiti. Never once has she questioned her conviction that this is where she is meant to be. Without doubt, there are families in Haiti who believe her to be the answer to their prayers; but as far as Gena is concerned, Haiti is the answer to hers.
“My father, who died last year, said to me that it is a hard life I’ve chosen for myself,” Gena recalls, “but I told him: ‘I don’t think it is. I think it would be harder if I didn’t do it.’
by Sarah Caden
NPH Haiti partnered with NRG Social Enterprise http://www.nrg.com to bring solar energy to our flagship home, St. Helene in the mountains of Kenscoff, Haiti. We are grateful for their support!
The Miss and Mister Competition
St. Helene, our flagship home in Kenscoff, has been a hive of activity these past weeks. We seem to have had one celebration after another;
- Feast day for Dominique Savio – a Salesian Saint that is held as a role model for our kids
- Feast day for Marie Mazerello – founder of the Salesian Sisters
- Beginning of the 4th Annual Miss and Mister of St. Helene competition
- Baptism of 24 children
So you see it has been a busy month and guess what? We are not finished with the festivities as on Friday we will celebrate the feast day of Our Lady Mary Help of Christians and on the 31st we will have First Holy Communion and Mother’s Day!
Let me tell you a little bit about the Miss and Mister competition. As I said this is the fourth time we have had this event and it is organized by one of our social workers, Mrs. Christella Barreau. The idea is to encourage the older children to work on their social skills, their general knowledge and their talents. They have to study hard as they are questioned on a variety of topics and they also have to present their own individual talents; music, dance, poetry, singing, whatever. They also take part in a host of workshops whereby they have different people coming to cover different topics with them and the whole idea is to help them grow and develop in ways that will be useful for their personal development and for their future careers.
An independent jury presides over each session and of course the audience is made up of all the other kids and staff. The competition takes place over a series of weekends and outings are also a part of the activities whereby the children get to visit some place of interest in the country. So far we have had two sessions of the event and they have gone very well. There is great support for the participants and what is beautiful is that everyone has the support of everyone. While it is a competition, the atmosphere is a family one. You see it when they are getting dressed for the event â€“ one helps the other. The objective is NOT to look better than the other, it’s that everyone looks beautiful. When one makes a mistake, the whole group feels bad for that person. If they feel one could do better, they all encourage him her to do better. It really is something to watch and I think Father Wasson would be very happy to see that these children really do feel that they are one family and it’s easy to see how they live out this feeling.
Of course there will be prizes for the winners and those that chose to take part. Our friends in the new Marriott Hotel kindly offered a day at their pool with food included for the finalists. This will be a special treat for everyone.
Stay well and stay supporting us – in whichever way you can!
Special Needs Director
May 18th is National Flag Day in Haiti. It is also a national holiday and we have no school, so we are all in red and blue today! This is a celebration of the adoption of the first purely Haitian flag on May 18, 1803 and every year it is celebrated with patriotic songs, parades and dance. Of course, we celebrate it too!
My name is Ryme. It’s almost two years since I came to Kay Christine. Back then I could not even take weight on my feet and I hated to do physical therapy. I was a bit nervous of my new surroundings – I had spent the previous four months in the hospital after my mom never came back for me. Now I am doing very well. I am very sociable, and I love to play with the other children in Kay Christine. It’s nice being able to walk – I am still a bit wobbly but each day I get stronger. In school I have lots of friends and the teachers love me to bits – probably because I am so cute and affectionate. Big people like to be cuddled and they love when I smile at them and I sure do that a lot! And I have a great sense of humour! I really feel loved in my new home and because of this it’s really easy for me to give love to everyone there. In the mornings I make sure to give all the staff a kiss when they come in to get us up from bed. I call out to them one by one and they always smile and laugh when I kiss them. I am not really great at kissing – I haven’t quite figured out how to do it, but I’m getting there. I say hello to all the other kids too, going from bed to bed. I love doing this at night time. In the beginning, Gena used to carry me from bed to bed but now I can actually do it by myself. I hold onto the beds and I walk from one bed to another. It’s so nice and what’s even better is that the other kids are so happy to see me do this. Cleevens always says, “bravo Ryme”. He is a real older brother to me. It doesn’t matter that he is in a wheelchair – he is really cool and he loves to come right up to me and put his head next to me. He really loves me – they all do!
I like to help the ladies when they are folding the clothes. Of course I am too small to fold them, but I do try. What I can do is hand the clothes to them and this is a help. Well I suppose I should let you go now. Keep me in your prayers and pray for all my family here in Kay Christine. Pray for my Mom and Dad too – for sure they left me in the hospital because they could not take care of me. Haiti is not easy for moms with kids like me. Bye.
P.S. When I have learned to blow kisses next time I will show you!
Today we were very happy to welcome two Papal Nuncios to St. Helene! Archbishop Eugene Nugent is originally from Ireland and in January he was appointed as the Papal Nuncio to Haiti. Archbishop Pierre Nguyen Van Tot is from Vietnam but is the Papal Nuncio to Sri Lanka and he was in Haiti on a visit to attend an ordination.
Both Nuncio’s were very impressed by all that they saw in St. Helene and they were warmly greeted by the children and staff. Archbishop Nugent said he was very happy to be able to take this time to get an understanding of the realities in Haiti. As we face many difficulties he advised us to always seek the help of God because there are problems everywhere and with the help of God we can do many things. Good advice indeed.
What is a A Papal Nuncio?
A Papal Nuncio is a papal ambassador, i.e. a permanent diplomatic representative of the Holy See to a state or an international organization. According to the 1961 Vienna Convention on Diplomatic Relations, a Papal Nuncio is an ambassador equal to an ambassador from any other country. However in Catholic countries the papal nuncio may rank above other ambassadors in diplomatic protocol.
The Papal Nuncio serves as the liaison between the Holy See and the Roman Catholic diocesan episcopate in the nation, region or organization in which he is placed. The region or nation is normally supervised by a regional conference of bishops, whose presiding officer is often the highest ranking bishop of that nation. Alternately the presiding officer is elected from the diocesan ordinaries of the nation or region.
“In peace I will lie down and sleep, for you alone, Lord, make me dwell in safety.” Psalm 48
What a beautiful psalm! How reassuring! Tonight after our night time prayer I took a few pictures of the kids before they went to sleep. You can see the smiling faces and you can see that for them, it is clear, they will lie down in peace and sleep in safety. How truly wonderful! I never cease to thank God for all that we are able to give these kids and for all that they give us in return.
But you know, in order for this psalm to be true, we need people. Kind loving people that will look after the kids during the night time. Kind, loving people that will be God’s physical angels during the night. Meet Jeanne and Andremise. For 20 years they have been looking after our kids during the night. For 20 years they have been the ones to ensure that the kids sleep in safety. With their loving arms they have comforted when comfort was needed. They have held sick children in their arms most of the night when this was needed. They have rushed upstairs to me for help when someone was critically sick and in need of extra attention. They have worried and stressed time and time again when we fought with illnesses that were determined to take our kids from us. They have wept and cried and grieved when we had to let go. Then with loving hearts they opened arms to each new addition to the family. With motherly love they have ensured that each new child felt at home from the first night she/he arrived.
All these years they have been family to us here in Kay Christine. Many times hurricanes prevented them from going home after the night shift, so they rolled up their sleeves and helped us get through the day as the day shift people could not come. The earthquake shook them as much as any of us and yet they stayed firm, putting the kids first. They have put up with me and my good sides and my bad sides – always patiently trying to understand what needs to be done. The administration records will tell you that they are staff. We know they are family. We know that without them, this psalm would have no meaning. I know that without them I would have no peace. God is good – don’t ever doubt it. Religions may disappoint us but always remember God is more than any one religion. And what is religion anyway but the attempt of humans to try and understand God. Let’s face it – God will never fit into our human limitations of what God is or is not. But I say it again, God is good and good comes from God. Jeanne and Andremise are two mighty women and they have their trust in God. Don’t be afraid to do the same.
My prayer tonight is one of thanksgiving for Jeanne and Andremise. I also pray that each of you reading this will be instruments of making Psalm 48 a reality for many, many people. For sure you are already to your children and loved ones. Maybe you can find ways to be an instrument for others.
Special Needs Director, NPH Haiti
“And is time not even as love is, undivided and paceless? But if in your thought you must measure time into seasons, let each circle encircle all the other circles, and let today embrace the past with remembrance and the future with longing.”
Early this morning I was writing a letter to a woman who will sponsor one of of children, Indira. I decided to send her a photo of the first day we accepted Indira into our home back in 1999. Then I went downstairs and took a picture with Indira.
As I looked at the two pictures I found myself thinking of all that has happened in our lives since the day I brought Indira to our home. I was reflecting on how the years have treated us. At the time I picked Indira up, she had been abandoned in our St. Damien Hospital and she was such a cute little girl. She was very responsive and always quick with a giggle and a smile.
Over the years Indira has held onto her beautiful smile and she has continues to enrich all our lives. Physically she has many limitations but her mind is sharp as can be and she has such a wonderful sense of humor. A few weeks ago I was in a meeting that dragged on way past lunch time. So when I came in , I went straight to the cooker and started preparing something to eat. One of the ladies came in and asked me how I was and I said I was great but I was starving with hunger! No sooner had I said this than I heard great laughter coming from across the room. I looked over and there was Indira laughing her head off at me and at the idea that I was so hungry! I did not even know she was keeping an eye on me! When I asked her what was so funny she laughed even more!! And so it is with Indira, always a reason to laugh and smile. It’s amazing really because for sure she would have lots of reasons to complain especially when you consider she is totally dependent on us. In the pictures below she is with her godfather Jourdain.
As you look at Indira, I hope you will see the fruits of our work all these years. The years bring challenges as happens everywhere, but my goodness how blessed we have been! I remember years ago Indira having seizures that lasted hours. That was so, so scary! Now she never has seizures! I never find the words to describe just how much Indira and the others in our home, bring to our lives. I always struggle to make people see that our relationship is not one sided. It’s not about us taking care of Indira. It’s now about us doing things for her. Rather it is a sharing of life together. It’s a sharing of our abilities and disabilities together – it may be easy to see Indira’s disabilities, but rest assured we all have many disabilities and lucky for me Indira is very patient with me and my disabilities!
Time seems to go so fast- I guess for those in hospital, prison and captivity, it is a different story. In the next few weeks I hope to write about our children and show you the progress we have enjoyed. I hope to give you more insight into our lives here. In the meanwhile here is a smile from Indira to brighten up your day.
Special Needs Director, NPH Haiti
On March 26th, the children at Ste. Germaine celebrated their Easter Holidays. Teachers, mothers and the children had a very nice “procession” to remember the suffering of Jesus on the way to Calvary. Following the procession, they watched a movie on the Passion of Jesus. While I was watching the procession and looking at the mothers and children, I was thinking (once again!!), that for so many of these mothers, they live their own Passion every day here in Haiti. No their kids are not crucified, but they are denied of so many basic rights and this denial often does indeed lead to their deaths. Poverty kills. Poverty crucifies–bodies and spirits. How must they feel, these mothers and fathers, when they cannot feed their kids, when they watch the little bodies rack with seizures, and they know that with medicine there would be no seizures? As Mary had to suffer while she watched them beat and crucify her innocent son, so too do these parents suffer as they watch poverty beat, humiliate and often, kill their children. The Easter story is not to be considered as an old story from years ago. Every day innocent people live out their own crucifixions. God raised Jesus from the dead. We try very hard to rise beyond the limits facing us and to bring life and education to those we serve. While we struggle with all we cannot do, we rejoice in all that we have been able to achieve thanks to the help of so many people. Our smiling children show us we are on the right path doing the right thing. Our smiling children give us a glimpse of the hope of the Easter Sunday Resurrection.
Contributed by Gena Heraty
Special Needs Director