Saying Goodbye to Beautiful Ednude


With great sadness we learned today that beautiful Ednude Virgile died yesterday after nine days in hospital. On March 14th she started having very bad seizures (sadly the mother had ran out of medicine and not had a chance to buy them). As it was night time, she could not go to the hospital with Ednude and so she continued to have bad seizures throughout the night. The next morning her mother took her to the hospital where she stayed until she died yesterday afternoon

Ednude was born on April 20, 2006. She was the only child of her loving mother and we first met them in February of 2009. Ednude”s mom adored her and took such good care of her. Ednude was her pride and joy and she rarely missed a day in school. Due to her severe condition, it as very difficult for her other to carry her and to bring her to our centre/school, but she made the supreme effort and Ednude loved school. She was very intelligent and loved to learn. Her beautiful smile and bright eyes communicated very clearly how she felt and she was always quick to respond.

Her mother is devastated–the father was no longer with them.You know death is very much a part of our lives here BUT so many times we feel so so frustrated because so many of these children in our program do not receive medicine as they should. Not because the parents don’t know how, but because they can’t afford them. It costs about 14 Euro for 30 tablets of Rivotril and about 22 Euro for a bottle of Depakene. If you are lucky enough to be working in Haiti, you will be lucky to be earning 5 Euros a day. Ednude’s mom is not one of the lucky ones! Can you see why buying medicines is so difficult?
So time and time again we say goodbye to beautiful children and time and time again we struggle to accept this reality.

We take comfort from the fact that in her short life Ednude was surrounded by people that loved her. She had a chance to come to school and share her beautiful personality with so many. We take comfort from the fact that (unlike so many others), she knew she was important to so many. She knew her Mom adored her. She knew we all loved her. It’s not enough is it? But it’s all we have. Please pray for her Mom. She was and is, a true witness of what it means to love because we know all too well just how hard it was for her. She never got discouraged. She put her daughter first and she did all she could.

A few lines from Gibran are apt now…“your children are not your children. They are the sons and daughters of Life’s longing for itself. And though they are with you, they do not belong to you. You may house their bodies but not their souls, For their souls dwell in the house of tomorrow…”

Contributed by Gena Heraty
Special Needs Director

In Haiti there is an almost complete absence of specialised training for teachers in relation to special education. In Kay Germaine, we have trained the teachers on site and provide regular upskilling at monthly formations. The teachers and assistants at our Special Needs Program are all both extremely talented and motivated, ensuring that we continue to provide the highest possible standard of education and care for the children.

Without your continued support this would not all be possible. Thank you to everyone and please continue to like and share our posts!

Congrats to Darlene!

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Congrats to Darlene who was invited to take part in The Special Olympics in Florida this weekend. She came away with a Gold and a Bronze medal. We’re all very proud!!!
Photo credit: Kristy Fueyo

To learn more about Darlene and NPH Haiti Special Needs Programs, view:

Equine Therapy

special needs horseback riding
Equine Therapy is a very important part of our Special Needs Program. Three times a week a bus full of children travels 2km through Tabarre to Chateau Blond for the therapy. Equine therapy has been shown to promote physical and emotional growth, while it also improves balance and strength. It is also clear that the children really enjoy the experience….the smiles are a dead give away!

smiles special need horse

Expanding Therapy Services

All children who are part of our program and require it, receive rehabilitation therapy from our local therapists. These therapists are expertly trained by volunteer physiotherapists who continue to ensure that our Special Needs Program provides the best possible service to the children.

With your help we have been able to maintain and expand this training program which now also helps train Haitian Therapists in other areas of Haiti. Through these efforts we are making our program more self-sustainable and increasing Haiti’s capacity to become more self-reliant in the provision of therapeutic health care to its citizens with special needs.

Join Us in Prayer Today

Today marks the fifth anniversary of the 7.0-magnitude earthquake that devastated the nation of Haiti. We are deeply grateful to everyone who supported our work in Haiti by sponsoring children, making donations, attending and sponsoring events, visiting our home, volunteering, and giving products and services. With your help, we were able to launch or expand many services after the earthquake.

Please join us in prayer today for our NPH Haiti family, for those that have lost family members, and for the country.

“This is the meaning of the day, solidarity among people of good will worldwide…and determination by the human race to keep going today –embodied by the Haitian people,” Fr. Rick Frechette.

Below is a video highlighting what NPH Haiti has accomplished during the past 5 years. It’s 3 minutes that you surely can’t miss.

Christmas Day at Kay Christine

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“Though you have not seen him, you love him, and even though you do not see him now, you believe in him and are filled with an inexpressible and glorious joy….” Peter 1:8-9

Some people might never imagine that one of the happiest places to be on Christmas day is here in Kay Christine! Oh how I wish I had the words to express just how happy our home is on Christmas day! What a day! A day of sharing food, sharing gratitude, sharing joy, sharing presents, sharing love! Have a look for yourself at the pictures and get a glimpse of what I am talking about!

The baby Jesus was born in a stable because no one wanted to give his mother and Joseph a room for the night. Most of the children/young adults in these pictures were abandoned because their parents could not find people to help them take care of them. They previously laid in hospital beds, often wet and dirty, often covered in flies because no one bothered to take care of them. No one bothered to think that they were real people! Some were years in the same room of a hospital with no stimulation. Some were abused before they came to us. Some have burn marks on their legs because someone thought they were possessed by evil spirits and tried to burn the devil out of them. Some were malnourished because no one had the patience to spend an hour to feed them. 

Thanks to NPH we were able to create a beautiful home for these children. Look closely and Thank God as I do that we have been able to give them a safe loving home. Thanks to NPH we are working very hard to provide services for children and to provide training to mothers and care givers so they can give the best care to children with severe disabilities – children with so many beautiful abilities.

Father William Wasson founded NPH over 60 years ago. We that work in NPH have one very simple thought in our head: ” we are all brothers and sisters and we all have the duty to take of each other.” Those of you supporting us are as much a part of NPH as we are. You should feel very, very happy because thanks to you, we are making miracles every day.
Lots of love to you all! 

Gena Heraty
Special Needs Program Director

The Mother’s Tap Tap Journey

mothers_Sometimes I wonder why they come. Why do they bother to make that difficult journey every day? I imagine them in their tiny homes, getting their kids ready in the morning and that in itself, no small feat as twisted bodies are not easy to dress. Twisted bodies do not bend and turn with ease as you try and pull on a beautiful dress or snazzy shirt. Most people have no idea how difficult it is to dress a body that is different. How careful you have to be so that the tiny bones do not snap when you try and force that arm into a shirt. Try putting on your shirt without bending your arms or head and you will quickly figure out what I am talking about. Twisted bodies of these beautiful boys and girls and these beautiful children make up our rehab programs in Haiti.

Still I am imagining them in their tiny homes. All dressed up and ready to go. Heave the heavy child in your arms and try and figure out the best way to have you and her comfortable. Gently cover the head so the hot sun does not bother your precious charge. No taxi waiting blowing his horn to take you to the clinic! A crowded Tap Tap – (covered pick up truck) is your taxi and here you must be agile to get in without either of you falling. Now the interrogation begins! What is wrong with your child? Why are you wasting your time with this useless thing? Are you stupid? Can’t you see it will never be any good? What about your life? Are you going to be a slave to this thing? Madam, keep away from me with your handicapped child. Why don’t you just leave it somewhere? It’s not worth your effort to do anything……….Father forgive them for they know not what they are saying. So you sit there with your child and you sit in silence because who will ever understand your love for this child. Let them talk, let them humiliate you and your child, let them! The tap tap has stopped and you must get out. Yippee! You get to repeat this whole experience because you must take another tap tap. In fact you will need three tap taps in all before you get to your destination and even then you will have to walk through the busy market area for about twenty minutes. Then you will have arrived. Imagine all the compliments you will have received before you have reached our door!

So it is you who come to our clinic and so it is that we get to know your stories. Stories of courage and determination! Stories of desperation and desolation! Stories of Love because for sure, only Love could withstand all you have encountered! Your precious children, eyes bright and bubbly, eyes that see far more than people realize. See them in the class room, singing and playing and learning – getting in trouble, fighting, screaming – all the things that children
should do.

Good for you! Emily – for years now your mother has struggled and struggled and look at you now! You are so much better. In fact we all thought you would die and how we rejoice in your life. Another will look at you and just see all that you cannot do. But we know different. We know you wanted to live and your mother Dieusimose wanted you to live. We know all her sacrifices – just for you. She calls you Laza (as in Lazarus) because she knows you came back from being almost dead.

Dear God in heaven, these mothers have it tough! This is why I am amazed that they keep coming because for sure the progress is slow. I started by saying that I sometimes wonder why they come. Of course I do know the answer but still I am amazed. No matter how well I try to write, no matter how well I try and tell their stories, I will NEVER be able to do justice to the difficulties of these mothers. I cannot find words to explain the gentle sigh of Mama Christopher when I ask her how things are for her. She will not complain because she knows that her sigh says it all. Or the absolute expression of joy and gratitude that swept the face of Mama Farah when I gave her $200 Haitian (approximately $28US), or the knowing nod of Mama Ricardo’s head when I asked her if she had gone back to the doctor. (She did not go because she had no money – she knew I knew as soon as I asked!)

Still they come and this is what counts. They come and we try very, very hard to help their kids and support them. We do what we can do; they do what they can do. It will never be enough. But we will keep on doing it because we have undertaken this journey and together we will go as far as we can!

Gena Heraty
Special Needs Director

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